Umbrella – ‘F-r-i-d-d-n-t’

abc

In school, Alejandro has just begun to be exposed to the concept of spelling - understanding that the letters he's learning makes up actual words - and like a bee to honey, he is all over it. Only problem is the word he's saying and how he is spelling it are like night and day, oil and water, chalk and cheese - you get my drift. The two are not similar by any stretch of the imagination because Alejandro can't spell yet - but he doesn't know … [Read more...]

Fretting Not Allowed

calm mother and child

No Fretting! That's my new personal motto and one that I'm hoping you will take on as well. Almost all parents feel some type of guilt on some level at varying points along their parenting journeys. "Did I do or say the right thing?" "Am I doing the best for my child?" "Is my child happy?" and the list goes on and on. For those of us who are parents of children born early and/or who have special needs, this feeling can be … [Read more...]

“Mommy, he’s blind”

Alejandro @ Rockafeller Center, Oct 8, 2011 003

"Mommy, he's blind" ... yelled the little girl while pointing at my son Alejandro as we walked past her at the swimming pool. My heart stung for a split second. Did Alejandro hear her? If he did, did he know that she was talking about him? We were rushing to the pool for his weekly swimming lesson and Alejandro was so excited about seeing 'Leche' (the nickname Alejandro has given his instructor) - that I'm not so sure the girl's … [Read more...]

Lessons From My Preemie

Celebrating my ex-24 weeker! Now 5 years old and my greatest teacher!

Today, Thursday the 17th November, is (drum roll please) the first-ever World Prematurity Day!!! To highlight this very special day, March of Dimes (March of Dimes) and its global partners want to saturate the World Wide Web and show how widespread and prevalent the instances of babies born prematurely really are. More importantly and personally, they want to honor the 1 million babies worldwide who were born prematurely and who died this … [Read more...]

Footsteps of My Daddy

Father and son, Father's Day 2011

For My Daddy Walk a little slower Daddy, said a child so small, I’m following in your footsteps And I don’t want to fall. Sometimes your steps are very fast, Sometimes they’re hard to see; So walk a little slower, Daddy, For you are leading me. Someday when I’m all grown up, You’re what I want to be; Then I will have a little child Who’ll want to follow me. And I would want to lead just … [Read more...]

DISENGAGE THE AUTOPILOT & RE-ENGAGE YOU!

Jumping image for May 2011 newslettter

"When you have come to the edge Of all light that you know And are about to drop off into the darkness Of the unknown, Faith is knowing One of two things will happen: There will be something solid to stand on, or You will be taught to fly" (Anonymous) By definition, autopilot is 'a navigational system that automatically keeps ships, planes or spacecraft on a steady course.' In people it is also defined as 'a … [Read more...]

GIVING YOUR CHILD (AND YOURSELF) A BREAK!

Alejandro and I admiring the falls in Niagara Falls, Canada

After intense consideration, my husband and I have decided to give Alejandro a break this summer and not put him in summer school….much to the dismay of many of the teaching staff and therapists who work with him. They feel he may regress – we feel he will blossom! Here in NYC, and I would presume in other states as well, the educational system strongly encourages children with special needs to attend school on a 12 month schedule … [Read more...]

ADVOCACY LESSONS FROM HUMPTY-DUMPTY

Funny Humpty Dumpty

Let's hear the rhyme again: 'Humpty Dumpty sat on a wall; Humpty Dumpty had a great fall, All the King's horses, And all the King's men Couldn't put Humpty Dumpty back together again.' Now, let's make a few modifications to it: (feel free to insert your child's name where it says, 'your child'): '(Your child) is a part of this world; (Your child's) abilities are constantly being twirled, Between all of the … [Read more...]

N-E-W Y-E-A-R, Make it Magnificent!

Fotalia New Year's image, 2011

N =The art of saying "NO." I've touched on this before in the past but feel that it is something that we need to be reminded of again from time to time. Now is that time. Many of us, me included, have felt and continue to feel a more than healthy amount of stress and anxiety due to our inability to say no. As special parents, we've had to take on more than our fair share of challenges and that's understandable - but the danger is when we … [Read more...]

“WHY IS BREAKFAST IN THE MORNING?”

Boy Eating Oatmeal, newsletter Dec 2010

  ....asked my 4 year old this week while I was preparing his favorite morning meal. As I racked my brain for a few seconds (minutes maybe:-)  trying to come up with a smart and quick answer that would make sense to him - he turned to me and said "Mummy, I want to eat my oatmeal please." The apparent importance of the earlier question had suddenly taken a back seat to the grumbling in his tummy! He had moved on while I was still trying to … [Read more...]