The Present of Presence During The Holidays

Who Am I

  P - Pause:  To slow down or stop for a moment R - Reflect: Consider/Think About who and where you are as a person. Do you like what you see or like the picture above shows, do you even know who that person is staring back at you? E - Empty: Get rid of any heavy, unhelpful internal or external baggage S - Savor: Oooo, savor how light you feel after all of that emptying E - Embrace: Welcome the positive change(s) in yourself N - … [Read more...]

Never Underestimate Your Child (or Yourself)

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Sometimes (when I feel like it), I stop and try to patiently answer their questions. "Yes, he's blind, he rides by listening to what's around him and I give him cues, he doesn't need to 'see' with his eyes to know where he's going, Yes, it's safe." Sometimes though (more often than not), I don't say a word - but just keep running alongside my munchkin as he slowly and steadily pedals his bike. The grins on both of our faces silence the critics … [Read more...]

Reclaiming Your Independence As a Special Parent

Self esteem

Now back to my earlier question: When was the last time you allowed yourself to be free and independent as a parent?  From my own personal experience as well as from the many conversations I've had with other parents, this question tends to be particularly difficult for parents of preemies, of children who are sick and parents of children who have special needs. This difficulty appears, partly at least, to be due to the sheer number … [Read more...]

Moms and Dads Who Are Different….

A premature baby holds his father's finger

Moms and Dads Who Are Different Here's to the Moms and Dads who are different, Moms whose pregnancies were cut short by a premature birth, Who grieve the loss of a normal pregnancy, while welcoming their child on this earth, Dads who want to give their spouses/partners support throughout their grief, But who are grieving themselves, many times with little relief. Here's to the moms and dads who are different, Who unexpectedly … [Read more...]

Giving Only What You Have in 2012!

The Little Drummer Boy (this version in particular) was Alejandro’s favorite song this Christmas and holiday season. Well this song and the one that, in his words: “says my name.” Translation: Alejandro by Lady Gaga. I’m 100% certain that The Little Drummer Boy and Lady Gaga don't exactly fit well together but hey in the world of a 5 year old - anything is possible! Whether you celebrated this holiday season with a Nativity Scene, a … [Read more...]

Footsteps of My Daddy

Father and son, Father's Day 2011

For My Daddy Walk a little slower Daddy, said a child so small, I’m following in your footsteps And I don’t want to fall. Sometimes your steps are very fast, Sometimes they’re hard to see; So walk a little slower, Daddy, For you are leading me. Someday when I’m all grown up, You’re what I want to be; Then I will have a little child Who’ll want to follow me. And I would want to lead just … [Read more...]

DISENGAGE THE AUTOPILOT & RE-ENGAGE YOU!

Jumping image for May 2011 newslettter

"When you have come to the edge Of all light that you know And are about to drop off into the darkness Of the unknown, Faith is knowing One of two things will happen: There will be something solid to stand on, or You will be taught to fly" (Anonymous) By definition, autopilot is 'a navigational system that automatically keeps ships, planes or spacecraft on a steady course.' In people it is also defined as 'a … [Read more...]

GIVING YOUR CHILD (AND YOURSELF) A BREAK!

Alejandro and I admiring the falls in Niagara Falls, Canada

After intense consideration, my husband and I have decided to give Alejandro a break this summer and not put him in summer school….much to the dismay of many of the teaching staff and therapists who work with him. They feel he may regress – we feel he will blossom! Here in NYC, and I would presume in other states as well, the educational system strongly encourages children with special needs to attend school on a 12 month schedule … [Read more...]

ADVOCACY LESSONS FROM HUMPTY-DUMPTY

Funny Humpty Dumpty

Let's hear the rhyme again: 'Humpty Dumpty sat on a wall; Humpty Dumpty had a great fall, All the King's horses, And all the King's men Couldn't put Humpty Dumpty back together again.' Now, let's make a few modifications to it: (feel free to insert your child's name where it says, 'your child'): '(Your child) is a part of this world; (Your child's) abilities are constantly being twirled, Between all of the … [Read more...]

N-E-W Y-E-A-R, Make it Magnificent!

Fotalia New Year's image, 2011

N =The art of saying "NO." I've touched on this before in the past but feel that it is something that we need to be reminded of again from time to time. Now is that time. Many of us, me included, have felt and continue to feel a more than healthy amount of stress and anxiety due to our inability to say no. As special parents, we've had to take on more than our fair share of challenges and that's understandable - but the danger is when we … [Read more...]